Run for the Rare

Run for the Rare is a running event organized by Haley's Heroes Foundation, taking place in Salem, Oregon, to raise awareness for rare diseases, particularly in support of International Batten Disease Awareness Day. The event features a 10k, 5k, and a 1-mile fun run/walk, encouraging participation from all ages. With 1 in 10 people affected by rare diseases, and many lacking FDA-approved treatments, this event aims to foster community support and awareness.

Participants are encouraged to share their experiences on social media using the hashtag #RUNFORTHERARE. Registration fees include a t-shirt, with proceeds supporting the cause. Visit the organization's website for the most recent information.