Let Leona Roar

Let Leona Roar is a virtual 5K event aimed at raising awareness for rare diseases, coinciding with Rare Disease Day. The event honors Leona, a young girl diagnosed with a rare genetic disorder, and seeks to foster community support and inclusion. Participants can register for the race, with proceeds benefiting the National Organization for Rare Disorders (NORD).

This initiative is part of a broader mission to enhance public knowledge about rare diseases and provide a platform for discussion and information sharing. The event will take place in Miramar, Florida, and encourages community involvement and fundraising efforts. Visit the organization's website for the most recent information.